But he’s not a wise sage all the time

mother explains incredible way she communicates with son born with cerebral palsy

‘My son has an amazing mind’ canada goose sale uk Chantal Bryan, 40, knew her son Jonathan, 12, couldn’t speak, but she had canada goose outlet hong kong a gut instinct there was a way to communicate with him07:00, 4 FEB 2018Jonathan’s progress has been astounding (Image: BBC) Get daily updates directly to your inbox+ SubscribeThank you for subscribing!Could not subscribe, try again laterInvalid EmailMy son Jonathan started secondary school last year, and like any parent, I was anxious. But I needn’t have worried he’s already a bit famous there. He came home recently and told me about some boys being jealous of the attention he got from Year 8 girls!Jonathan is bright cleverer than me and his poetry is amazing. But he’s not a wise sage all the time, he’s a naughty 11 year old underneath it all, who is fun to be with. Although it could’ve all been so different, he was silent for so long.In canada goose outlet toronto address 2006, Jonathan was born with cerebral palsy and renal canada goose outlet ontario failure. We’d been driving to a country pub and another car smashed into us, and although I was canada goose clothing uk fine, it caused a placental abruption and Jonathan was being deprived of oxygen. He had to be delivered by emergency caesarean and was born blue and lifeless.In the first few days he didn’t make the progress we were hoping for, and at two and a half canada goose outlet germany weeks old he had an MRI scan.’It’s one of the worst scans of a brain the technician has seen,’ one canada goose outlet in montreal of the neonatal consultants canada goose uk site told us. He said it was a shame Jonathan wasn’t on a ventilator at the time, as then we could have ‘switched him off’.When you are told news like that it creates a bleak numbness. We didn’t burst into tears, it takes canada goose factory outlet vancouver time to sink in.The list of the things Jonathan would not be able to do was seemingly endless run, jump, sit, talk, eat, even recognise us, his parents. But we knew there was fight in him, and while there was, we weren’t going to give up. I found from the beginning that the only way to cope is one day at a time, and that we are given what is needed for each day as it comes.During canada goose outlet edmonton the next few months we had to make decisions on whether or not to continue Jonathan’s treatment, particularly for his kidneys. Each time we had conversations with consultants I asked them to look at the baby in the cot there was something about him.A knowing look, the look of someone who knew what was going on. Eventually we brought him home, but the first few years were a blur canada goose jacket outlet uk of hospital visits, regular dialysis, followed by a kidney transplant when he was nearly four. Yet despite all the visits to hospital and illness, it was obvious to us Jonathan was in there.Like many children with cerebral palsy, we tried a number of ways for Jonathan to communicate. Fortunately, from quite an early age he developed a ‘yes’ and ‘no’ face for things he was asked about and cared about.Courageous girl, 5, runs for first time canada goose stockists uk after spending her whole life attached to breathing ventilatorUntil he was seven, Jonathan was in a wheelchair and had no speech. He communicated with smiles, tears, laughter and the occasional jerky movement. He loves being cuddled, he has two younger sisters, Susannah, eight, and Jemima, five, and we involved him in everything we did.We were also told to try sign. It became obvious Jonathan could understand what we said to him, but he didn’t have the control of his body to sign back. We knew he was capable of so much more, but he was treated like a toddler at the special school he attended. Now, he explains how degrading and frustrating it was being talked to like a deaf toddler. He felt his brain was shutting down there, but I didn’t know any of this because he had no way of telling me.It was when he got to canada goose outlet online reviews seven that I made a big decision. I could see the school wasn’t going to progress beyond music and play, so I talked to a teacher who suggested I try teaching Jonathan to read at home. We took him out of school for a few hours a day to teach him to read, write and do basic maths using his eyes. We canada goose factory outlet toronto location set canada goose outlet parka up a Perspex board with letters, words or numbers stuck on I’d point to a square, and he’d move his eyes to signal what he wanted to use. But two weeks in, Jonathan seemed bored, so I made him a more complicated board with more vocabulary.With only a few hours a day, Jonathan’s progress was astounding. I taught him to read and write over the next couple of years. Then, when he was nine, I was holding Jonathan so he could use his eyes to choose letters to write a story canada goose outlet england about a pirate and he spelled out ‘myriad’. I was gobsmacked. That was the point he found his own voice he could finally ‘talk’ to us, we’d write down what he signalled with his eyes. I realised I could ask him anything. I cannot describe what it’s like to be able to talk to your child for the https://www.winterdownparkas.com first time.It was the most amazing thing, we all gathered round desperate to ask him questions and find out what he thought. The things he was telling us about were mind blowing, and the character we already knew was in there blossomed. It’s wonderful to be able write it all down and to have a conversation with someone you love so much and in many ways know so well. But also we were surprised by what we already knew about Jonathan. I said, ‘What’s canada goose outlet eu your favourite ice cream flavour?’ As he spelled out chocolate I realised I canada goose outlet vancouver already knew that!Danielle Lloyd opens up about fears son Harry, six, has Asperger’s syndrome canada goose shop uk as she says she feels ‘judged’ for his behaviourNow Jonathan was able to go canada goose parka outlet uk to primary school and within two years he’d caught up with his classmates. He has told me his talent for poetry and writing comes from spending the first seven years of his life watching, listening and being read to when he couldn’t communicate.I don’t think he was unhappy before, but canada goose outlet he’s more fulfilled now. He reads lots of books, and began a blog, using the same perspex board to tell me what to write.

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